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FINDING + FIXING LCH
in death i blog
the only goal
fight for my kids + quality of life
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Samantha Tomaszewski
Jun 44 min read
WTF is Remission?
My hair is finally growing back. After the radiation in January, my hair would come in, then Iâd feel this burning on my scalp and it...
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Samantha Tomaszewski
Mar 224 min read
đąWhat goes upâŠ.
How many times can a coaster click someone up slowly to shoot them through chaos before they're required to get off? -side note- My...
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Samantha Tomaszewski
Feb 223 min read
An đ a day.
Well, maybe an đ each month. It's the end of February. I've been to NYC twice, with a third trip scheduled in May. I finished radiation...
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Samantha Tomaszewski
Feb 12 min read
Remission?
2/1/2024 Is April fools day a month early? I still have pain and I am walking with a cane today. But fuck it/ I feel amazing. I have...
36 views0 comments
Samantha Tomaszewski
Jan 43 min read
Radiation 1/4/2024
Getting here has been.... a ROAD. I'm technically on my second treatment of radiation. A series of six low dose treatments to my skull...
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Samantha Tomaszewski
Dec 31, 20232 min read
The Good News⊠11/15/2023
It's the day of my follow up with đ my Neurosurgeon. I'm sitting there waiting. Nervous? Expecting the "abnormal" results Hoping it's...
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Samantha Tomaszewski
Dec 28, 20233 min read
November 2nd Loganâs BD
It's Thursday. I'm getting released on my son's actual 18th birthday. One year prior, I had a one-time seizure-like event where he was...
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Samantha Tomaszewski
Dec 23, 20232 min read
The WaitâŠ.
I have to stop counting days. It's the day after surgery, I continue to experience relief from the pressure that was in my skull. There...
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Samantha Tomaszewski
Dec 19, 20232 min read
đ„SURGERY DAYđ„
Technically- Day 17 of đ„painđ„ I wake up in the surgical recovery area feeling amazing. I've had surgeries- too many to count- and I...
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Samantha Tomaszewski
Dec 18, 20235 min read
Day 16 + 17: Pre-Opposition
My head: Hold my đș- Take my kid home- I'm ready to fight. Alright, đ- Neurosurgeon: I NEED you right now I HATE you right now I don't...
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Samantha Tomaszewski
Dec 17, 20234 min read
Day 15-16: âSurgeryâ Sleepover
It's Saturday morning - I am NPO and waiting to see the Neurosurgeon or hear about a surgery time. The nurse reminds me that they said...
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Samantha Tomaszewski
Dec 16, 20235 min read
Day 14: Not Patient
I'm not patient. This is probably karma to some capacity A majority of my career involves making others wait. Covid didn't help that...
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Samantha Tomaszewski
Dec 15, 20233 min read
Day 13 + 14: admitted
The circus. đ€Ą Whatever this lytic lesion is or whatever is making it bite into my head MUST stop ASAP. My only mission in EVERY...
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Samantha Tomaszewski
Dec 13, 20232 min read
Day 13âs đ„
My Dad? Grandparent's? Instincts? God? Fear? Someone or something has completely taken over at this point. 4:10 AM- They took me to have...
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Samantha Tomaszewski
Dec 12, 20231 min read
đ LUCKY DAY 13 đ
10/26/2023 1:30AM It's Thursday morning. Kinley (my 9yo) crawls into bed with me and snuggles against my back so I roll over to tuck her...
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Samantha Tomaszewski
Dec 12, 20231 min read
Day 12: Not WorkingâŠ
I've got things to do. No time for this shit. And now? A 2nd MF bump đ€Ź I'm a mom of the two best humans. I'm happy + fulfilled I'm...
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Samantha Tomaszewski
Dec 12, 20232 min read
Day 11: Not Working
I'm an idiot sometimes.... That pain after you get the Novocaine injections and it wears off? That pain is all over my head. Why did I...
49 views0 comments
Samantha Tomaszewski
Dec 12, 20231 min read
Day 10
What random dermatologist can I find to rip this shit off? October 23, 2023 This bump/bruise/ach/migraine is killing me. Google map...
50 views0 comments
Samantha Tomaszewski
Dec 12, 20231 min read
Day 4
Ugh- this knife- Tuesday- October 17th -and the hard spot on the back of my head is throbbing throughout work, maintaining a constant...
55 views0 comments
MY LANGERHANS CELL HISTIOCYTOSIS PATH
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Woman Up
In a short time Iâve learned a lot about rare adult cancers, treatment gaps, medical navigations, relationships, etc. Iâm documenting my experience for reflection and understanding.
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