top of page
FINDING + FIXING LCH
in death i blog
the only goal
fight for my kids + quality of life
Search
Is it the Vent?
Yes- as a Catholic, some assume I’d be superstitious by nature. Perhaps. Yet while at The University of Michigan, I’m staying in the MOTT...
Samantha Tomaszewski
Feb 123 min read
68 views
0 comments
Weird.
Let’s give my life a title. Just one word to describe or prelude the inevitable. In this case, I don’t need help- it’s just WEIRD. If...
Samantha Tomaszewski
Jan 262 min read
71 views
0 comments
Survival Calculator
Swimming
Samantha Tomaszewski
Sep 14, 20242 min read
101 views
0 comments
WTF is Remission?
My hair is finally growing back. After the radiation in January, my hair would come in, then I’d feel this burning on my scalp and it...
Samantha Tomaszewski
Jun 4, 20244 min read
92 views
0 comments
🎢What goes up….
How many times can a coaster click someone up slowly to shoot them through chaos before they're required to get off? -side note- My...
Samantha Tomaszewski
Mar 22, 20244 min read
93 views
0 comments
An 🍎 a day.
Well, maybe an 🍎 each month. It's the end of February. I've been to NYC twice, with a third trip scheduled in May. I finished radiation...
Samantha Tomaszewski
Feb 22, 20243 min read
50 views
0 comments
Remission?
2/1/2024 Is April fools day a month early? I still have pain and I am walking with a cane today. But fuck it/ I feel amazing. I have...
Samantha Tomaszewski
Feb 1, 20242 min read
45 views
0 comments
Radiation 1/4/2024
Getting here has been.... a ROAD. I'm technically on my second treatment of radiation. A series of six low dose treatments to my skull...
Samantha Tomaszewski
Jan 4, 20243 min read
50 views
0 comments
The Good News… 11/15/2023
It's the day of my follow up with 😎 my Neurosurgeon. I'm sitting there waiting. Nervous? Expecting the "abnormal" results Hoping it's...
Samantha Tomaszewski
Dec 31, 20232 min read
50 views
0 comments
November 2nd Logan’s BD
It's Thursday. I'm getting released on my son's actual 18th birthday. One year prior, I had a one-time seizure-like event where he was...
Samantha Tomaszewski
Dec 28, 20233 min read
40 views
0 comments
The Wait….
I have to stop counting days. It's the day after surgery, I continue to experience relief from the pressure that was in my skull. There...
Samantha Tomaszewski
Dec 23, 20232 min read
64 views
0 comments
🔥SURGERY DAY🔥
Technically- Day 17 of 🔥pain🔥 I wake up in the surgical recovery area feeling amazing. I've had surgeries- too many to count- and I...
Samantha Tomaszewski
Dec 19, 20232 min read
68 views
0 comments
Day 16 + 17: Pre-Opposition
My head: Hold my 🍺- Take my kid home- I'm ready to fight. Alright, 😎- Neurosurgeon: I NEED you right now I HATE you right now I don't...
Samantha Tomaszewski
Dec 18, 20235 min read
100 views
0 comments
Day 15-16: ❌Surgery✅Sleepover
It's Saturday morning - I am NPO and waiting to see the Neurosurgeon or hear about a surgery time. The nurse reminds me that they said...
Samantha Tomaszewski
Dec 17, 20234 min read
66 views
0 comments
Day 14: Not Patient
I'm not patient. This is probably karma to some capacity A majority of my career involves making others wait. Covid didn't help that...
Samantha Tomaszewski
Dec 16, 20235 min read
81 views
0 comments
Day 13 + 14: admitted
The circus. 🤡 Whatever this lytic lesion is or whatever is making it bite into my head MUST stop ASAP. My only mission in EVERY...
Samantha Tomaszewski
Dec 15, 20233 min read
72 views
0 comments
Day 13’s 🔥
My Dad? Grandparent's? Instincts? God? Fear? Someone or something has completely taken over at this point. 4:10 AM- They took me to have...
Samantha Tomaszewski
Dec 13, 20232 min read
92 views
0 comments
🍀 LUCKY DAY 13 🍀
10/26/2023 1:30AM It's Thursday morning. Kinley (my 9yo) crawls into bed with me and snuggles against my back so I roll over to tuck her...
Samantha Tomaszewski
Dec 12, 20231 min read
69 views
0 comments
Day 12: Not Working…
I've got things to do. No time for this shit. And now? A 2nd MF bump 🤬 I'm a mom of the two best humans. I'm happy + fulfilled I'm...
Samantha Tomaszewski
Dec 12, 20231 min read
58 views
0 comments
Day 11: Not Working
I'm an idiot sometimes.... That pain after you get the Novocaine injections and it wears off? That pain is all over my head. Why did I...
Samantha Tomaszewski
Dec 12, 20232 min read
53 views
0 comments
MY LANGERHANS CELL HISTIOCYTOSIS PATH
If you have questions or a desire to BeatLCHnow, please ask how I can help and support you through your process.
Woman Up
In a short time I’ve learned a lot about rare adult cancers, treatment gaps, medical navigations, relationships, etc. I’m documenting my experience for reflection and understanding.
Get in Touch
bottom of page