Day 13 + 14: admitted

The circus. 🤡

Whatever this lytic lesion is or whatever is making it bite into my head MUST stop ASAP.

My only mission in EVERY interaction with EVERY staff is to wait, listen, and beg for the pain to stop.

A neurosurgeon's NP😇, a neurologist 🥸 their student🫤, an otolaryngologist🤡, an infectious disease specialist 🤓, and a hospital physician 👨‍⚕️ - step into my new ER room to give me a physical and let me know they are waiting for a room upstairs.

This is where I can look back and laugh-

🤡 First guy to speak (loudest in the room) was the ENT- he did a quick check of my ears, the bump, and looked in my nose and throat. He asked if he could use his scope and take a closer look, stating "I've seen something like this before and I need to check for something."

The others physicians are in the room and are patiently waiting. He looks into my nose and says you have a hole in your septum-

I reassured him that was from the another ent surgery/ gave him the year.

While he's scoping/ I'm choking/ still in pain and puking-

I repeat- who needs to finish their exam to get this out asap?- only praying they took the 🤡's wand.

🤡 ENT: "Well, I have time now- if you need it out we can do it today."

EVERY DOCTOR IN THE ROOM: 🫠 🫤😆😳

Me: "isn't neurosurge in the room?"

😇 NP: [audible sigh] Yes. Right here- don't worry, we are the ones admitting you- we have to do another scan but the plan is to biopsy it.

Me: sweet- when's the test? Today?

ER Nurse: prolonged eye contact as Im scrambling to wipe up the puke. She is trying to help me-

The team does there thing, checks my symptoms-

• my labs are back- since the 1st allergic reaction my liver enzymes went from average to 700s

• The weakness on my right side was noted

• They discussed the potential for infection, benign lesions, malignancy

• The infectious disease guy was confident that infection was unlikely- not noted in blood, exam, or scan. Still waiting on cultures.

• The neurologist was concerned with my brain/soft tissue involvement but they were confused by the presentation /CT.

• The general physician was calmly sharing human stuff- you're being admitted, we are going to try to control the pain. Try to get some rest.

In an attempt to help my pain- they start trying different pain meds- fentanyl + something else 🤷🏼‍♀️

Allergic reaction to the pain med #2 - same response. I'm hunched over, vomiting, and sweating- using the GI cocktail to soothe and try to sleep.

In an attempt to stop a potential/unlikely infection, they had started two short but potent doses of antibiotics. My liver enzymes kept climbing.

Within the hour-

The nurse disconnects my antibiotic and explained that I had a response to the dose or medication and they are discontinuing the treatment.

Me: confused because I'm still hoping I get some miracle antibiotic and walk out pain free 🥴

I look up my labs..... and wait for the action-

I quickly see the issues- my AST:ALT(liver) and another tissue measure called LDH-

It's still the 27th- the 31st is my measure once the lesion was removed (part of it...)

Meanwhile back in the ER holding area- and the 3rd allergic response to pain meds-

Me: I refuse all pain meds- it isn't touching the pain anyway (bone pain).🙃

For the fellow med nerds - or legit anyone who has any interest in learning about Histiocytosis- Here is a blood level cliff notes of this shit storm-